tag:blogger.com,1999:blog-7238780007621149539.post2599280854072908713..comments2023-12-23T00:50:44.532-08:00Comments on Booby and the Beast: Are We Terminal?Booby and the Beasthttp://www.blogger.com/profile/01130302818680322634noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7238780007621149539.post-79065787926518531142014-09-23T10:51:02.732-07:002014-09-23T10:51:02.732-07:00I love you, my friend. I believe. I love you, my friend. I believe. Booby and the Beasthttps://www.blogger.com/profile/01130302818680322634noreply@blogger.comtag:blogger.com,1999:blog-7238780007621149539.post-84827514293714352752014-09-23T10:49:38.709-07:002014-09-23T10:49:38.709-07:00Elizabeth, I agree 100%. My oncologist has said we...Elizabeth, I agree 100%. My oncologist has said we'll treat this "like a chronic illness, like diabetes or heart disease," but that doesn't mean it IS chronic (although I have hope). "Incurable" is one possibility, but -- to me -- it seems to have a ring of hopelessness. I am open for suggestions, because sometimes I truly do not know how to describe what it is we're living with.Booby and the Beasthttps://www.blogger.com/profile/01130302818680322634noreply@blogger.comtag:blogger.com,1999:blog-7238780007621149539.post-88561268324919695962014-09-23T10:43:29.933-07:002014-09-23T10:43:29.933-07:00It was such a revelatory exercise for me! In a can...It was such a revelatory exercise for me! In a cancer world that can feel very isolating, this query helped take away some of that loneliness (as reaching out to others in this community always tends to do).Booby and the Beasthttps://www.blogger.com/profile/01130302818680322634noreply@blogger.comtag:blogger.com,1999:blog-7238780007621149539.post-77040447027611516012014-09-21T20:03:27.836-07:002014-09-21T20:03:27.836-07:00I had just read a quote from you (in my book) on h...I had just read a quote from you (in my book) on how you thought we need to watch the language we use around illness. If we are busy writing our stories and working to create our future, we have to hold on to the power we have to influence what will happen.Forget the "terminal." We are going to dance at Quinn's wedding. :) Believe. Sandra Marinellahttps://www.blogger.com/profile/13325167495772576102noreply@blogger.comtag:blogger.com,1999:blog-7238780007621149539.post-31077602355689621732014-09-17T10:49:29.067-07:002014-09-17T10:49:29.067-07:00I think we need another word other than terminal b...I think we need another word other than terminal because we tend to think of that as someone who will die within months or a year. <br />But, chronic does not seem to fit either. I have a number of friends who have lived with chronic diabetes for 20+ years, others with chronic asthma for life, my hypothyroidism is chronic. Out of my many friends with those kinds of chronic diseases, none have died of them, and treatment is highly effective for living a normal life, not disabling through treatment induced pain and fatigue. I did have a great-aunt who died of diabetes complications in her mid-90s, but that was after being diabetic close to 40 years. <br />Metastatic cancer, with life extending treatments, just does not seem in the same category as other diseases we consider chronic.<br />I feel like we often live too long to really be considered terminal (thank God), but chronic just does not seem to fit either. Maybe we need a new word?<br />Elizabeth J.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7238780007621149539.post-12265677919824985582014-09-17T06:58:57.106-07:002014-09-17T06:58:57.106-07:00Hi Jennifer,
Thank you for sharing these thoughts ...Hi Jennifer,<br />Thank you for sharing these thoughts expressed by others living with metastatic disease. Definitely much to think about here for all of us.Nancy's Pointhttp://www.nancyspoint.comnoreply@blogger.com