Thursday, October 1, 2015

A Story Half Told

So here it is. October is upon us. Tonight, even the lights at the top of the Empire State Building will glow pink.

And Quinn and I are in New York City to experience it. Chris will join us this weekend because he wanted to buy Quinn a hot dog on the Battery Park Staten Island ferry as we make our way to the Statue of Liberty. Still, we're not just here for the cooler temps, the hot dogs, or even the pink lights.

Quinn and I flew out for the launch of a Pfizer-led initiative, A Story Half Told, that aims to change the breast cancer conversation to include stories of those of us living with metastatic breast cancer. The project debuted at Milk Studios last night with a gallery opening of photo essays documenting a day or two in the lives of five of us women, the idea being that photography can make a compelling impact in a way that words often can't or don't express.


Universally, the essays were poignant, raw, and intimately beautiful. You can view them all in their entirety here. In particular, the behind the scenes footage of Holley Kitchen's experience with her photographer, Angelo Merendino, had me completely choked up.

In addition to the photo essay, I was asked to speak at the event.


Here's what I said:

Thank you all so much for being here for the launch of A Story Half Told. My name is Jen Campisano, and this is my son, Quinn — the light of my life.

When Pfizer asked me to be a part of this project a few months ago, I jumped at the opportunity to share my story to a wider audience, to — I hope — give a better idea of what life looks like after a metastatic breast cancer diagnosis. Mostly, it looks like life, with a few more doctor’s appointments.

There are still kids’ birthday parties to attend, laundry to be done, backyard pools to swim in, bedtime stories to be read. There are also port draws, CT scans, chemotherapy appointments, and follow-up visits with my oncologist every few months.

What I want you all to understand from this exhibit is that metastatic breast cancer affects women at all stages of life, from all backgrounds and ethnicities. Cancer does not discriminate.

It is a terrifying, life-altering thing, to be told you have incurable cancer, that you’ll always be in treatment. But I want you to also see how each of us are living in spite of our illnesses.

Most days, we are thriving instead of cowering. We allow ourselves the freedom to rest and recuperate when we need it, but then we get on with the business of life — caring for our children, grandchildren, communities, gardens, and ourselves.

We fall down and then stand up again and again and again, even in the face of grave circumstances. It is what we do.

Quinn doesn’t know any different. I was diagnosed when he was just 5 months old, more than four years ago. I don’t know any different as a mom. We have been together every step of this, he and I.

When I was diagnosed, the statistics said I had a 1 in 5 chance of watching my son start kindergarten. Because of some incredible drugs and my dogged determination (my husband calls it stubbornness) and some very good luck, I have had no evidence of disease for nearly two years now.

I still receive a targeted chemo every three weeks as a sort of insurance policy. I had treatment Monday, then flew out here from Phoenix yesterday when I’d normally be recovering on my couch. I feel a little nauseated, and not just because I’m nervous about speaking in front of all of you.

God willing, I will walk Quinn into his first day of kindergarten next August. With new therapies on the horizon, there’s hope I will dance with him at his wedding, too.

I want that to be the reality for all of us living with metastatic breast cancer. That is my hope for this project: to shed more light and understanding on this disease so more research gets funded so more of us can get back to the business of living.

I am very proud to be a part of this exhibit, which so beautifully portrays the realities of our various lives. With that, here is the incredibly talented photographer who captured my story, Pei Ketron.


***

Maybe we can start to change the conversation about metastatic breast cancer by sharing our stories in new, compelling ways. Please spend some time on the Story Half Told website. Get to know these women, their stories. And then share them, please. The world needs to know, especially as Pinktober descends and pink ribbons fly all around us.

Disclaimer: I worked with Pfizer on a collaboration to raise awareness about metastatic breast cancer. The opinions expressed in this blog post are mine, not Pfizer's.

23 comments:

  1. There should be more projects like this one. Glad you were part of it to speak the truth about this disease. Thanks for sharing your experience. Will check out A Story Half Told.

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    1. I hope they'll expand this project to include so many women's stories. Or that other organizations will take up the challenge to shed light on this disease. I feel like it's starting to happen. Thanks for taking a look! XO

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    2. I have been suffering from (HERPES) disease for the last four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr Gumbla on : (greatgumblaspellhome@outlook.com) or thought his website http://eromosalspiritualtemple.webs.com or call or what'sapp him with +2348161850195.. THESE ARE THE THINGS DR GUMBALA CAN ALSO CURE.. GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORT SIGHTEDNESS PROBLEM, Stroke, Bring back ex lover or wife/husband....sir i am indeed grateful for the help i will forever recommend you to my friends!!!

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  2. I love how this project came out! I heard about it beforehand and was super excited. I hope you got copies of all of the amazing photos!

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    1. I'm working on getting those! Thanks for the feedback!!

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  3. It all seems like a dream to me, I never thought that I will live on earth before the year runs out. I have been suffering from a deadly disease (HIV) for the past 5 years now; I had spent a lot of money going from one places to another, from churches to churches, hospitals have been my home every day residence. Constant checks up have been my hobby not until this faithful day, I was searching through the internet, I saw a testimony on how DR.Antogia helped someone in curing his HIV disease, quickly I copied his email which is antogiatraditionalhealer@yahoo.com just to give him a test I spoke to him, he asked me to do some certain things which I did, he told me that he is going to provide the herbal cure to me, which he did, then he asked me to go for medical checkup after some days after using the herbal cure, I was free from the deadly disease, he only asked me to post the testimony through the whole world, faithfully am doing it now, please brothers and sisters, he is great, I owe him in return. if you are having a similar problem he is the best to seek for help.

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  4. Am Tanya Albert, Dr. Ekpiku God will continue to bless you more abundantly, for the good works you are doing in peoples life, I will keep on writing and posting testimonies about you on the Internet, I’m Tanya Albert, I was a HIV patient, I saw a blog on how Dr. Ekpiku cured someone, I contacted him and also got my healing, kindly email him now on ekpikuspelhomeofgrace@gmail.com or ekpikuspelhomeofgrace@hotmail.com email me on tanya.albert58@yahoo.co.uk. THESE ARE THE THINGS Dr. Ekpiku. . HERPES . HIV/AIDS . CANCER...

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  5. Appreciation is the key to doing more that is why I have took some time out to thank some one who cured me of my 2 years Herpes Simplex problem. It became a major problem to me as it was affecting my marital life and I was no longer comfortable so I decided to look for a solution and I came across a post of Dr Lusanda and how he has been helping people of the same problem I contacted him and told him all I have been facing in my life. He told me how to get his product and how to take it after every thing I find out that all was now okay with me and that my Herpes problem was gone that is why I have come out today to say thank you to him and for any problem either from man or woman. Contact him on Drlusandaherbal@gmail.com or website on www.drlusandaherbals.weebly.com

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  6. Hey Dr Ekpiku is real and he's powerful herbal treatment..After been in pain and sorrow for over 6 years it was Dr Ekpiku that cured me from Herpes Simplex Virus, I got infected with Herpes Simplex Disease in 2011 and I have visited several herbalists, spiritualists and pastors for cure me but all was in avail, my world was gradually coming to an end until i saw a post in a health forum about a herbal medicine from Africa who have and herbal medicine to cure all kinds of deadly diseases including Walter,HIV AIDS, ALS, HPV, MND, Epilepsy, Leukemia, Asthma, Cancer, Gonorrhea,Hepatitis B etc, at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email,ekpikuspellhomeofgrace@gmail.com he prepared a herbal medicine portion and sent it to me via DHL Delivery when i received this herbal medicine portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 2 weeks, I am now Herpes Negative.his email: ekpikuspellhomeofgrace@hotmail.com all thanks to Dr Ekpiku. Contact this great herbalist called Dr Ekpiku or or whatapps, call +2348073673757. or text me on +13103598621.

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  7. Am Success Puga from USA. I can’t believe this. A great testimony that i must share to all HERPES patient in the world i never believed that their could be any complete cure for HERPES or any cure for HERPES,i saw people’s testimony on blog sites of how DR Ekpiku prepare herbal cure and brought them back to life again. i had to try it too and you can,t believe that in just few weeks i started using it all my pains stop gradually and i had to leave without the HERPES DRUGS the doctor gave to me. Right now i can tell you that few months now i have not had any pain,delay in treatment leads to death. Here is his email:ekpikuspellhomeofgrace@hotmail.com or ekpikuspellhomeofgrace@gmail.com his WHATSAPP number is +2348073673757
    DOCTOR Ekpiku CAN AS WELL CURE THE FOLLOWING DISEASE:-

    1. HIV/AIDS
    2. HERPES
    3. CANCER
    4. ALS
    5. Hepatitis B
    6. Parkinson

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  8. Hello Wonderful Viewers Join me give thanks to Dr Sunshine for his Divine help on my life. 3 years ago i was diagnosed of Genital Herpes, and ever since i have been looking for a remedy on how to eradicate my disease. so i went in search for a cure and behold i came in contact with my famous Dr Sunshine who has cured people of their Genital Herpes, i was so glad that finally i can be cured from this disturbing disease and so i contacted his email adrress: dr.sunshineherbalhome@gmail.com call or whatsApp +2349051208634 and when i did email him he wrote to me and give me a brief instruction on how to get my medicine prepared and so he did he prepare my medicine and sent to me to receive and told me that in 2 weeks i will see his great work.i beckoned on his words and so he did.i received my medicine and i used it in 2 weeks and i was totally cured. contact him today and be cured. So friends my advise is if you have such sickness disease, HERPES CURE OR CANCER OR HIV&AIDS, PENIS ENLARGEMENT,ASTHMA.

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  9. I am Sarah Joyce from USA ,I really happy that i and my husband are cured of (HERPES SIMPLEX VIRUS) with the herbal medicine of Dr Odioa , i have been suffering from this disease for the past 3 years without solution until i came across the email of this doctors who have cure so many people with his herbal medicine, i also choose to give him a chance to help me and my husband, he told me what to do and i kindly did it, and he gave us his herbal medicine and direct me on how to use it, i also follows his instruction for use and he ask us to go for a check up after 3 weeks and which i did, to my greatest surprise our result came out as negative, we are really happy that there is someone like this DR who is ready to help anytime any day. to all the readers and viewers that is doubting this testimony stop doubting it and contact this Dr and see if he will not actually help you. i am not a stupid woman that i will come out to the public and start saying what someone have not done for me. His contact on: odioaherbalcurehome@gmail.com,

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  10. I am Sarah Joyce from USA ,I really happy that i and my husband are cured of (HERPES SIMPLEX VIRUS) with the herbal medicine of Dr Odioa , i have been suffering from this disease for the past 3 years without solution until i came across the email of this doctors who have cure so many people with his herbal medicine, i also choose to give him a chance to help me and my husband, he told me what to do and i kindly did it, and he gave us his herbal medicine and direct me on how to use it, i also follows his instruction for use and he ask us to go for a check up after 3 weeks and which i did, to my greatest surprise our result came out as negative, we are really happy that there is someone like this DR who is ready to help anytime any day. to all the readers and viewers that is doubting this testimony stop doubting it and contact this Dr and see if he will not actually help you. i am not a stupid woman that i will come out to the public and start saying what someone have not done for me. His contact on: odioaherbalcurehome@gmail.com,

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  11. Thank you Dr. Okuns, your herbal medicine is a good remedy for herpes cure, and Removing Warts! You can contact Dr. Okuns via E-mail: herbal.home247@yahoo.com for any types of diseases solutions or WhatsApp him on: +2348078467513

    My name is Mary Hanson, am from United State. I want the general public
    to know how this great man called Dr. Okuns cure me and my sister from GENITAL HERPES with the herbal medicine gotten from him, he cures other diseases too like STD, SYPHILIS, My own was worst I have suffered for Human papilloma virus HPV) for 2years he cure me too, herbal is a great medication. he have a medicine that is 100% percent assured to cure any type of disease and you don't need to spend so much money anymore . I want you to contact Dr. Okuns on: herbal.home247@yahoo.com My family is now a brand new one, so stop your worries and go get your herbal medicine now to get your family free from deadly disease. Once again thanks to Dr. Okuns you can contact him now via phone number: +2348078467513 or email him on: herbal.home247@yahoo.com

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  12. I have been suffering from (HERPES) disease for the last four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr Gumbla on : (greatgumblaspellhome@outlook.com) or thought his website http://eromosalspiritualtemple.webs.com or call or what'sapp him with +2348161850195.. THESE ARE THE THINGS DR GUMBALA CAN ALSO CURE.. GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORT SIGHTEDNESS PROBLEM, Stroke, Bring back ex lover or wife/husband....sir i am indeed grateful for the help i will forever recommend you to my friends!!!

    ReplyDelete
  13. I am Sarah Joyce from USA ,I really happy that i and my husband are cured of (HERPES SIMPLEX VIRUS) with the herbal medicine of Dr Odioa , i have been suffering from this disease for the past 3 years without solution until i came across the email of this doctors who have cure so many people with his herbal medicine, i also choose to give him a chance to help me and my husband, he told me what to do and i kindly did it, and he gave us his herbal medicine and direct me on how to use it, i also follows his instruction for use and he ask us to go for a check up after 3 weeks and which i did, to my greatest surprise our result came out as negative, we are really happy that there is someone like this DR who is ready to help anytime any day. to all the readers and viewers that is doubting this testimony stop doubting it and contact this Dr and see if he will not actually help you. i am not a stupid woman that i will come out to the public and start saying what someone have not done for me. His contact on: odioaherbalcurehome@gmail.com,

    ReplyDelete
  14. Happiness is all i see now I never thought that I will be cured from HERPES virus again. I have been suffering from a deadly disease (HERPES) for the past 3 years now, I had spent a lot of money going from one places to another, from churches to churches, hospitals have been my home every day residence. Constant checks up have been my hobby not until this faithful day, I was searching through the internet, I saw a testimony on how DR Aba helped someone in curing his HERPES disease, quickly I copied his email which is dr.abaherbalhome@gmail.com just to give him a test I spoke to him, he asked me to do some certain things which I did, he told me that he is going to provide the herbal cure to me, which he did, then he asked me to go for medical checkup after some days after using the herbal cure, behold I was free from the deadly disease, he only asked me to post the testimony through the whole world, faithfully am doing it now, please brothers and sisters, he is great, I owe him in return. if you are having a similar problem just email him on ( dr.abaherbalhome@gmail.com ) or you can whatsApp his mobile number on +2348107155060

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  15. All thanks to DR OFURE, I am here to share a good testimony of my self on how i came in contact with a real herbalist who helped me. i appreciate everyone for taken their precious time to read my testimony, 6 months ago i was diagnosed of HERPES, this means that 6 months ago i was HERPES positive when i told one of my good friend about this, she sympathized with me and then she said that she was going to help me out, she told me that we should do some research on the Internet, we came across Dr OFURE and my friend said that she has come across a lot about him and said that he is a real herbalist remedy to all illness, i was really surprised on this and confused as well, I was so speechless and quickly i contact him to help me and he prepared some herbs for me and send it across to me and he told me the way i was going to be taken the medicine which i did, and in the next 2 weeks i went to the hospital and they said that i am now HERPES negative, i am very happy about this, when i contacted Dr OFURE again to tell him the good result , i asked him how he was able to help me, and he said that he was gifted with it that he can cure any disease. also reach him to because health is better than wealth Email him drofureherbalhome@gmail.com you also can call or message on via whatsApp +2348162868851

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  16. HELLO everybody am from New Zealand I wanna thank the great DR ABOR for curing me from herpes virus and hiv with the help of his herbal medicine am very happy, I never thought I would ever be cured because of the condition the doctor give to me, until a friend of mine direct me to this man called DR ABOR who healed me totally from herpes virus and hiv, he is a good man and he also cast spell, you can reach him with IRABORSPELLHERBALHOME@GMAIL.COM
    and he also cure HEPATITIS A B C
    and ANY TYPE OF CANCER, LUPUS, HPV, LOOKING FOR BABY, ERECTION EJACULATION
    and HIV AIDS
    he also cast spell to get your EX BACK
    you can reach him on via IRABORSPELLHERBALHOME@GMAIL.COM OR WHATSAPP +393512728432

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  17. PLEASE READ THE FOLLOWNING ABOUT HERPES CURE

    My name Christiana Henry I am here to give my testimony about DR INIBOKU who helped me in life. I was infected with HERPES in 2016, i went to several hospitals for cure but there was no solution, so I was thinking how can I get a solution so that i can live a normal life again. One day I was in the trabaco side thinking on how i can find the cure because the pain was to much i always feel embarrass everyday.as i was sitting alone lamenting in tears a lady walked to me her name is kutrila asking me why i am crying, i open up to her telling her my problem,that i have herpes genital and i also narrate how it started to her. she told me not to worry that she can help me out, she introduce me to a Dr iniboku who uses herbal medication to cure HERPES. so i exchange my contact with kutrila when i got home i receive a call from her that she has contacted Dr iniboku on my behalf and she also send Dr iniboku contact, so i mail Dr iniboku and explain to him about my illness. He told me that he can cure my herpes within 8 days and he told me all the things I need to do.after 3 days he send the herbal medicine to me and also give me instructions how to take the medication which I did and i followed his instruction properly. Before I knew what is happening after one week i cured from herpes totally and all the blister and itching was gone. i decide to share this story because i believe a lot of people are passing through the same stress and they have it in mind that there's no cure for herpes.i am telling each and everyone who's reading my testimony that there's cure for herpes. if you have the faith try and use Dr iniboku herbal medicine, i promise you after 8 days you will also share a marvelous testimony like me.if you are you are having herpes or any kind of disease kindly mail doctor iniboku for your own cure via drinibokuspelltemple@gmail.com and you also call him or message on via whatsApp at +2347059186346

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  18. HELLO OUT THERE.. i quickly want to use this opportunity to explain to you how useful its to pay attention to any articles that come across your way in life, long time ago i was told by my doctor that There is currently no cure for Herpes Simplex virus. i learnt that Most treatment on herpes focuses on getting rid of sores and limiting outbreaks was made from herbs. It is possible that your sores will disappear without treatment. However, your doctor may determine that you need one or more of the following medications:
    acyclovir
    famciclovir
    valacyclovir
    These medications may come in oral (pill) form, or may be applied as a cream. For severe outbreaks, these medications may also be administered by injection. However, there are herbal therapies that could totally eradicate this virus from the body meanwhile there has been proofs and lots of testimonies to that effect. I took my time to investigate one Dr. Odoma on how his herbs magically cured my friend Anthony and his Wife who contacted this embarrassing virus. Please do reach out to Dr. odoma via his email: odomaspelltemple@outlook.com You can also reach me with +1 251-287-3241 for further confirmations

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  19. Happiness is all i see now I never thought that I will be cured from HERPES virus again. I have been suffering from a deadly disease (HERPES) for the past 3 years now, I had spent a lot of money going from one places to another, from churches to churches, hospitals have been my home every day residence. Constant checks up have been my hobby not until this faithful day, I was searching through the internet, I saw a testimony on how DR Aba helped someone in curing his HERPES disease, quickly I copied his email which is dr.abaherbalhome@gmail.com just to give him a test I spoke to him, he asked me to do some certain things which I did, he told me that he is going to provide the herbal cure to me, which he did, then he asked me to go for medical checkup after some days after using the herbal cure, behold I was free from the deadly disease, he only asked me to post the testimony through the whole world, faithfully am doing it now, please brothers and sisters, he is great, I owe him in return. if you are having a similar problem just email him on ( dr.abaherbalhome@gmail.com ) or you can whatsApp his mobile number on +2348107155060

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  20. HOW I GOT CURED FROM HERPES VIRUS I was diagnosed of HERPES Virus in 2014 and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including HERPES virus, at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a HERPES herbal cure and sent it to me via UPS delivery company service, when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 14days of usage, I am now free from the deadly disease called herpes, all thanks to DR.AGBEBAKU. Contact this great herbal doctor via his email:dragbebakuspellsolutiontemple@gmail.com or dragbebakuherbalhome@yahoo.com call or whatsapp him on his mobile number (+2349053099479).see more at: https://dragbebakuherbalho.wixsite.com/solutioncenter

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