Showing posts with label melanoma. Show all posts
Showing posts with label melanoma. Show all posts

Wednesday, May 18, 2016

A Series of Catastrophes & Miracles


I honestly wasn't sure about reviewing this memoir on my blog. I haven't even been writing about me on my blog lately because I can't find the words. I don't know if it's the vernal equinox, or the fact that we finally chose a kindergarten -- hallelujah -- after months of debates and tours and assessments and non-refundable deposits, or if it's because I'm also training for and fundraising my butt off for a 39.3-mile walk in a little over two weeks. 



Whatever the reason, I haven't found time (or words) to write lately.

But the publicist appealed to the mom in me. The synopsis she sent promised the story of a mom diagnosed with metastatic cancer who experiences nothing short of a medical miracle. More than anything, I wanted to read A Series of Catastrophes & Miracles because who doesn't love a good miracle? Isn't it what we all hope for? So I said yes and received my copy in the mail a few weeks ago. 

From the opening "Spoiler: I lived.", I was hooked. I freaking devoured this book. So if you're looking for a more balanced review, you may want to look elsewhere. I'll be over here re-reading my copy a few more times. You should go get your own.

As a stage 4 cancer patient, of course I could relate to so many of Ms. Williams' experiences -- MRIs and PET/CT scans, learning the language of cancer, facing your mortality far younger than you ever expected, even dealing with scars because your body has been carved up in an attempt to rid you of the disease that might kill you. "I do what I can to cover my scar, so the sun won't burn more cancer around the part of my scalp the doctors removed--and also because I don't want my freakishness to make people uncomfortable. And by people, I mostly mean my own children," Ms. Williams writes. She is witty and snarky and reminds me of some of my best friends.

So many times in the book, I wished I could sit down with her over coffee and scones -- or a glass of wine -- to say, "Me, too. I've been there." I've lost too many friends. I've marveled at my response to treatment when others whose disease seems the same on paper don't fare as well. "This is the cruel reality of successful cancer treatment. You want so much for everybody to get what you got, and for it to work like it did on you, but that's not how it happens. Instead, getting better often feels as random as getting sick was," she says.

I wanted to give Ms. Williams a high-five and a hug for lauding the scientists who hand her her miracle. She writes, "And just to be perfectly clear on this point in case somehow you missed it--I didn't get better because I prayed correctly or because I'm strong. I got better because the science worked on me." A-freaking-men. The author's calls for more research -- because sometimes it works! -- are woven throughout the narrative, and I hope above all this book spurs a loud public cry for science funding increases.

As a wife who's watched my husband lose both his parents, there were uncanny parallels in Ms. Williams' story and my own. Through the difficulties of loss, and how a marriage can contain enormous grief yet still find space for enduring love, I found myself wanting to underline and highlight entire chapters. "Yes, this. And also this," I kept thinking, often through tears.

And as a mom, I could also relate. In one passage, Ms. Williams writes, "When I walk in the door at last, the first thing I do is the first thing I always do when I get in late. I peek in on the girls and their dreaming forms. Sometimes, when I look at them, I see the babies they once were, all flushed and milk drunk in my arms, their chubby hands curled around my finger. I remember them pulling up to standing in the crib, then plopping down on unsteady legs with surprised giggles. Other times, I look at them and see two young women, a bride and her maid of honor at a wedding, or two grubby travelers throwing down backpacks in the hall after a month hiking Central America together. I want to be there, I think, as I watch them from the doorway, for all of it." 

I put the book down then, got out of bed to go check on Quinn, and listened to the sound of his rhythmic nighttime breathing. I know this mom. I know this love. I want to be there for all of it, too. Here's to more miracles.

A Series of Catastrophes & Miracles cover

About A Series of Catastrophes and Miracles

• Hardcover: 304 pages • Publisher: National Geographic; 1 edition (April 26, 2016) A wry, witty account of what it is like to face death—and be restored to life. After being diagnosed in her early 40s with metastatic melanoma—a "rapidly fatal" form of cancer—journalist and mother of two Mary Elizabeth Williams finds herself in a race against the clock. She takes a once-in-a-lifetime chance and joins a clinical trial for immunotherapy, a revolutionary drug regimen that trains the body to vanquish malignant cells. Astonishingly, her cancer disappears entirely in just a few weeks. But at the same time, her best friend embarks on a cancer journey of her own—with very different results. Williams's experiences as a patient and a medical test subject reveal with stark honesty what it takes to weather disease, the extraordinary new developments that are rewriting the rules of science—and the healing power of human connection.
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Mary Elizabeth Williams AP

About Mary Elizabeth Williams

Mary Elizabeth Williams is a senior staff writer for award-winning Salon.com whose columns are regularly among the top viewed, commented on, shared, and cited as the best of the week. The "Lab Rat" series on her clinical trial was nominated for the 2012 Online Journalism Award for Commentary, and her essay on receiving a melanoma diagnosis is in the Harper anthology The Moment, an Entertainment Weekly "Must List" pick—alongside essays by Elizabeth Gilbert, Jennifer Egan, and Dave Eggers. She is the author of Gimme Shelter: Ugly Houses, Cruddy Neighborhoods, Fast Talking Brokers, and Toxic Mortgages: My Three Years Searching for the American Dream. A starred Booklist selection,Gimme Shelter was called "poignant and funny" (Kirkus), "a must-read" (New York Daily News), "hilariously evocative" (Time Out Kids) and "compelling" (Publisher's Weekly). She lives in New York City with her husband and two daughters. Find out more about her at her website.

Wednesday, January 28, 2015

Another Doctor's Visit and a PSA

Sadly, being diagnosed with one type of cancer does not make you immune to other cancers. Radiation treatment can lead to an increased chance of thyroid and skin cancers. Certain genetic mutations mean that some women are prone to getting both breast and ovarian cancers (see: Angelina Jolie). Because my dad was diagnosed with melanoma in 2012, I am at an increased risk of skin cancer, too.

It didn't help that I lived in Hawaii from 1982-85 (although it is still my happy place, sunshine be damned), sandwiched by stints in southeastern Alabama (more sunshine). Later, in high school, I lived in Florida and spent almost every weekend at the beach or the pool. And then a bunch of us in college used to get set for spring break with weekly visits to a cheap tanning bed up the street from our university. For a base tan, we told ourselves.

Then we sat on a catamaran in Jamaica and got fried anyway because base tans don't protect against burns, it turns out. I mean, look at this godawful "tan" line of mine, circa 1998 in Jamaica. (I should have at least kept wearing the same swimsuit every day. Oh, the advice I would like to share with my younger self...)


Here's the thing: I don't remember ever wearing sunscreen until my twenties, although I must have. Right...? Mom?

These days, I'm religious about it, especially living in Arizona. And I am always hopeful that the damage hasn't already been done. Because wouldn't that be the pits? To survive stage four breast cancer only to be taken down by a wayward mole?

So when a spot on my nose started looking weird a couple of weeks ago, I made an appointment with a dermatologist. This spot was pink and looking pinker, and I strongly suspected basal cell carcinoma. Because that's where my mind goes after what I've been through. And even though basal cell carcinoma is a highly treatable form of skin cancer, it's still cancer. On my face.

Except it wasn't. It isn't. The spot on my nose is a sun spot (so damage, yes) combined with a broken capillary underneath that is making it appear pink. Nothing a little concealer can't hide, or -- if I'm feeling really vain -- have fixed by laser treatment down the road. I had a full body scan, too, and everything looks okay.

I was a nervous wreck undressing for that doctor, though. Because I couldn't help thinking about how horrible it was to hear, "You've got cancer," the first time. I was scared out of my wits about living through those three words again.

So here's my little public service announcement: wear sunscreen. Every day. Put it on your kids, too. Don't go to tanning beds, ever. Maybe cover up a bit if you're going to be on a catamaran in Jamaica and drinking too much rum punch. And -- as always -- even if you seem crazy to everyone around you, if something seems weird on your body, please please please get it checked out. Please.

You can now go back to your regularly-scheduled programming.

Friday, September 5, 2014

Around the Web

Here's what I found on the internet this week. All of these advances, and we're still losing too many people to cancer. Please hurry, science.

{photo credit}

Harnessing the Immune System to Stop Melanoma

Yesterday, Merck received fast-track approval for a drug that boosts immune cells to fight melanoma.

"Merck is also studying pembrolizumab against a type of lung cancer, advanced head and neck cancer and late-stage bladder cancer."

Related: An Association Between Melanoma and Breast Cancer Risks

This was on the local news Monday night. It's just one more reason for me to be even more paranoid about every little dot on my skin, especially after my dad's bout with melanoma two years ago. Time to make that annual appointment with my dermatologist.

More Research into How Cancer Metastasizes, And (Maybe) How to Stop It

Unfortunately, drug inhibitors likely won't be available for five to ten years. Seriously, please hurry up, science.

How Much is a Year of Life Worth?

A follow-up from last week's article about the shake-up in what drugs the UK's health system will continue to cover (or not).

Liquid Biopsies -- Coming Soon to a Doctor Near You?

“'By repeating these blood tests regularly, they may give us a very accurate understanding of whether someone is responding to their treatment or not — which is very important for a woman to understand.

'She doesn’t want to be on a treatment that’s not working, or be exposed unnecessarily to side-effects, when she could be switched to a therapy that could be more effective,' Dr Dawson said."

Men Get Breast Cancer, Too -- But Could These Cases Have Been Prevented?

A look into whether the drinking water (or other contamination) at a U.S. Marine Base is causing cancer, and this man's untimely death